Measuring physiological changes can help validate emotional states of people with profound learning disabilities

PMLD

The recent publication of Raising Our Sights, the DH report into support for people with profound intellectual and multiple disabilities set out a challenge for everyone concerned with understanding and responding to people with such disabilities. A number of projects have produced practical guides for involving and engaging with people, for example, Mencap’s Involve Me [read the full story...]

New guides to improving support for people with profound intellectual and multiple disabilities published

Positive relationship found between mood, total emotion score and frequency of emotion when stimuli were positive

In 2010, the Department of Health published Raising our Sights, Professor Jim Mansell’s report into services and supports for people with profound intellectual and multiple disabilities. The Government’s response was to broadly welcome the report’s recommendations and “its central message that the major obstacles to wider implementation of policy for adults with profound intellectual and [read the full story...]

Ombudsman finds service failures once again in report on death of young woman with learning disabilities

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As you know here at Elf towers, we are committed to bringing you the evidence, so that you can make informed decisions about practice. However I hope you’ll forgive a slight deviation from this aim this Friday, as we bring to your attention the publication of yet another report that highlights poor NHS care. On [read the full story...]

Issues unique to people with profound intellectual and multiple disabilities impact on autonomic nervous system signals in communication

Alex-3b

We have posted previously about the challenges faced by people with profound intellectual and multiple disabilities in communication and the ways in which those who support them might use a variety of tools to improve this. Researchers have asked whether it might be possible to look at changes in physiology to provide information on emotions [read the full story...]

Combination of behavioural and physiological measurements may help to better understand communication of people with profound learning disabilities

Alex-4

Supporting people with profound learning disabilities creates a communication challenge for those in the supporting role raising the question of how best to understand and respond when people do not use words to communicate. We have posted previously about resources available to help with this issue, for example national projects like Mencap’s Involve Me as [read the full story...]

Heart rate and skin temperature offer insights into emotions of people with profound learning disabilities

Alex-3b

The late Jim Mansell recently identified the need for all of us supporting people with profound learning disabilities to ‘raise our sights’ in ensuring better quality support and subsequently better outcomes requires a significant amount of skill  (see Raising our Sights)  Projects like Mencap’s Involve Me offer a range of resources aiming to break down [read the full story...]

Staff did not always follow guidelines when reading multi sensory stories for people with profound and multiple disabilities

Communication Aid

Multi-sensory story telling is one way that adults with profound and multiple learning disabilities can make sense of who they are and what is happening in their day to day lives. The books used are individualised stories which, in addition to verbal text, also involve sensory stimulation. The approach is gaining in popularity, but as [read the full story...]

Receptive communication issues key in small study of adults with profound learning disabilities

Communication Aid

Difficulties  experienced by people with learning disabilities with communication can impact greatly on their ability to have control over their lives. Problems can be with receptive, expressive, or written domains. The researchers in the present study set out to look specifically at the communication difficulties faced by 204 people described as having profound learning disabilities [read the full story...]

Clear policy and procedure required to guide social interaction between support staff and people with congenital deafblindness

support

A recent review of literature suggested that interactions between support workers and people with learning disabilities with congenital deafblindess were lacking both in quantity and in quality. The authors of the current small study wanted to look in more detail at the perspectives of the support staff on their interactions with this group of people. [read the full story...]

Multisensory storytelling did not result in high quality staff interactivity

Good_idea

Storytelling has a key role to play in a development and the extension of storytelling to people with profound intellectual and multiple disabilities (PIMD) as an individualised activity, has been increasingly undertaken emphasising the sensory experience and the potential for social interaction. The authors of this study appear generally positive to the approach, although the [read the full story...]